We are coming up on 1 year this month from the actual diagnosis from CHOP. It has been a crazy year. A busy year. And a beautiful year.
I've gone from counting my kids words to not even being able to count them all now! A crayon and a utensil is not such a scary thing anymore. Putting my child on the bus is not so scary anymore. Getting the notes home from school that Lia is transitioning well, makes me very proud.
Lia and I got to this point together. I helped her and she helped me. We've grown from each other. She is 3.5 years old now and flourishing. There is certainly a long road ahead, but baby steps will get us there together.
Congrats! It is not an easy road but(as the mother of two daughters with disabilities)I can tell you, it is rewarding(and still, sometimes frustrating). But the rewarding outweights the frustration. My frustrations are often not w/my daughters but w/'the system.' Wishing you and your family well.
ReplyDeleteThank you Nancy! I agree with you about 'the system'
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